Friday, March 29, 2019
Not Wigging Out
"You're going to lose your hair."
It's difficult to take. My hair is one of the only physical attributes I like. If I cut it too short, I cry. My breath gets shaky when I assess my options. I ponder wigs close to my natural color and texture. I think about radical purples and neon pinks. How will synthetic fibers behave in high winds? I imagine a gust absconding with my temporary hairdo and giving it to a tree out of spite.
"It doesn't start falling out until shortly after dose two."
My hair thins out for a few days after my second dose, but then it holds steady. I'm relieved by the temporary stop. Maybe I won't go completely bald. It doesn't have to happen to everyone, right?
"Are you sure you don't want hair?"
Gayle bustles around the room, gathering hats and scarves for me before I go to my third chemotherapy treatment. Everything is free, but I feel guilty taking it. The disposeable cap on my head simulates baldness as I stare at myself in an oval mirror. My husband compliments me with each thing I try on. I leave with a pink gift bag full of things to hide one of chemo's more telling presents.
"Some people just buzz it all off."
My hair almost entirely abandons me after dose three. I chop off the length to keep it from tangling as it evacuates onto my pillows and clothes. I now have bare spots and downy wisps like a baby bird. My scalp is sensitive and hurts for no reason, and I want to shave my head but decide against it. I stare at my face in the bathroom mirror until I don't care about what frames my fat cheeks and quadruple chin.
"No one will be fooled by a wig when I don't even have eyelashes," I tell my mom.
Eventually, every hair on my body is going to go. There will be no "hiding" what is happening to me. I'm not artistic enough to draw convincing eyebrows. I go outside in my turquoise hat for the first time, and I don't lament my missing locks... I rejoice that I'm still here.
Friday, March 15, 2019
When thoughts of death wake me...
...in the middle of the night, I come to consciousness sharp. My body startles like birds buckshotted from branches. I'm in the dark, husband with parted lips by my side.
And, I'm scared. I fear death. I've almost died more times at 34 than most people can boast throughout a lifetime. I've had cancer twice. Will this be what ends me?
I think of my last conversations. Did I tell my husband he is my all? Did my mom and I say anything meaningful to each other? Will my sister know what a privilege it was to be her sidekick? What did I say, and did it convey my love and gratitude correctly?
I tell myself I'm still alive. Still here now. This moment of anxiety and dread sponsored by a beating heart. No one is promised anything else. It's the same promise I was given before cancer: You're alive this instant... congratulations!
Minutes tick by.
I think of everything I want for everyone I love. I hold them in my heart and pray for them. They are my legacy to this world—everything good I've ever done they helped shape a thousand ways. I hope they can say the same of me.
Then, there are my favorite memories I keep like a mix-tape: My first kiss at the airport the day after Christmas, singing to Kitty Wells with my mom, shooting bow and arrow in the barn, family camping trips, the walk of a thousand fireflies. More things, each something beautiful and irreplaceable. I focus my mind inside a moment that made me feel most whole or moved me.
By the time I fall asleep again, I'm smiling.
Maybe, by the time my life ends, there will be more mix-tape memories. Maybe there will be more people I hold so close they smudge the glass of my soul. Maybe fear is a partition my dreams exist beyond, should I choose to seek them.
And, I'm scared. I fear death. I've almost died more times at 34 than most people can boast throughout a lifetime. I've had cancer twice. Will this be what ends me?
I think of my last conversations. Did I tell my husband he is my all? Did my mom and I say anything meaningful to each other? Will my sister know what a privilege it was to be her sidekick? What did I say, and did it convey my love and gratitude correctly?
I tell myself I'm still alive. Still here now. This moment of anxiety and dread sponsored by a beating heart. No one is promised anything else. It's the same promise I was given before cancer: You're alive this instant... congratulations!
Minutes tick by.
I think of everything I want for everyone I love. I hold them in my heart and pray for them. They are my legacy to this world—everything good I've ever done they helped shape a thousand ways. I hope they can say the same of me.
Then, there are my favorite memories I keep like a mix-tape: My first kiss at the airport the day after Christmas, singing to Kitty Wells with my mom, shooting bow and arrow in the barn, family camping trips, the walk of a thousand fireflies. More things, each something beautiful and irreplaceable. I focus my mind inside a moment that made me feel most whole or moved me.
By the time I fall asleep again, I'm smiling.
Maybe, by the time my life ends, there will be more mix-tape memories. Maybe there will be more people I hold so close they smudge the glass of my soul. Maybe fear is a partition my dreams exist beyond, should I choose to seek them.
Monday, March 11, 2019
Chemo: The guessing game
It's time to play, well, no one's favorite game! Guess What?! It's the game where chemotherapy patients wonder just what the hell is going on.
Questions from this dose include:
Where is the blood coming from? Toes.
When will I have another bowel movement? Five days. Then your toes aren't the only bloody part.
How much hair am I losing daily? Half an ice cream pail of strands.
Why am I hurting so much? Chemo, weather front, and an injection.
I'm entering week two (my "better" week of each dose) tomorrow. I can do this. I just wish it weren't so rough.
Questions from this dose include:
Where is the blood coming from? Toes.
When will I have another bowel movement? Five days. Then your toes aren't the only bloody part.
How much hair am I losing daily? Half an ice cream pail of strands.
Why am I hurting so much? Chemo, weather front, and an injection.
I'm entering week two (my "better" week of each dose) tomorrow. I can do this. I just wish it weren't so rough.
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